Monday, September 12, 2011

Invisible Illness


This week marks "Invisible Illness Week"! Invisible Illnesses, or as I like to call them "ninja illnesses" are illnesses that cannot be observed by the naked eye. To show my solidarity for ninja illnesses I completed a survey that I found on Invisible Illness Week's Website.

30 Things About My Invisible Illness You May Not Know-
1. The illness I live with is: Multiple Hereditary Exostoses 
2. I was diagnosed with it in the year: 1989
3. But I had symptoms since: 1989
4. The biggest adjustment I’ve had to make is: Having to use a cane to walk
5. Most people assume: I was in some form of car crash
6. The hardest part about mornings are: getting up, sometimes I'm in a lot of pain
7. My favorite medical TV show is: House... because IT'S NEVER LUPUS 
8. A gadget I couldn’t live without is: my computer, it connects me to the world when I physically cannot
9. The hardest part about nights are: trying to find a comfortable position
10. Each day I take __ pills & vitamins: 2-3 pills a day, 1-3 vitamins 
11. Regarding alternative treatments I: like to dapple in it occasionally, but most of them don't work for my issues
12. If I had to choose between an invisible illness or visible I would choose: invisible, so people I don't know would think I'm normal
13. Regarding working and career: work around your disability and do what you can do
14. People would be surprised to know: I can actually walk pretty fast when I have to
15. The hardest thing to accept about my new reality has been: This isn't a new reality for me, it's just reality
16. Something I never thought I could do with my illness that I did was: have perfect attendance in high school AND college... BOO YA
17. The commercials about my illness: Commercials? 
18. Something I really miss doing since I was diagnosed is: Again, not applicable 
19. It was really hard to have to give up: It's hard to give up my mobility
20. A new hobby I have taken up since my diagnosis is: not running
21. If I could have one day of feeling normal again I would: Dance, do gymnastics, physical stuff
22. My illness has taught me: That you have to deal with the hand you're dealt
23. Want to know a secret? One thing people say that gets under my skin is: "I feel so sorry for you" I really don't need your pity
24. But I love it when people: Ask me how I'm doing or congratulate me on something I did
25. My favorite motto, scripture, quote that gets me through tough times is: Rise & Fly
26. When someone is diagnosed I’d like to tell them: That everything will be okay
27. Something that has surprised me about living with an illness is: It gives you a clearer perspective on life
28. The nicest thing someone did for me when I wasn’t feeling well was: Sent me a facebook message saying get well soon
29. I’m involved with Invisible Illness Week because: To show that just because someone looks normal, you can't always assume that they are
30. The fact that you read this list makes me feel: Peachy Keen

1 comment:

  1. Oh wow- I love the term ninja illness! I so have to start using that!!
    I so agree with your computer answer. When I started blogging I could barely sit up in bed with my laptop but blogging gives me motivation, routine and contact with lovely people such as yourself- nice to meet you. :)

    Florrie x


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