Showing posts with label invisible illness week. Show all posts
Showing posts with label invisible illness week. Show all posts

Monday, September 12, 2011

Invisible Illness

Hello,

This week marks "Invisible Illness Week"! Invisible Illnesses, or as I like to call them "ninja illnesses" are illnesses that cannot be observed by the naked eye. To show my solidarity for ninja illnesses I completed a survey that I found on Invisible Illness Week's Website.

30 Things About My Invisible Illness You May Not Know-
1. The illness I live with is: Multiple Hereditary Exostoses 
2. I was diagnosed with it in the year: 1989
3. But I had symptoms since: 1989
4. The biggest adjustment I’ve had to make is: Having to use a cane to walk
5. Most people assume: I was in some form of car crash
6. The hardest part about mornings are: getting up, sometimes I'm in a lot of pain
7. My favorite medical TV show is: House... because IT'S NEVER LUPUS 
8. A gadget I couldn’t live without is: my computer, it connects me to the world when I physically cannot
9. The hardest part about nights are: trying to find a comfortable position
10. Each day I take __ pills & vitamins: 2-3 pills a day, 1-3 vitamins 
11. Regarding alternative treatments I: like to dapple in it occasionally, but most of them don't work for my issues
12. If I had to choose between an invisible illness or visible I would choose: invisible, so people I don't know would think I'm normal
13. Regarding working and career: work around your disability and do what you can do
14. People would be surprised to know: I can actually walk pretty fast when I have to
15. The hardest thing to accept about my new reality has been: This isn't a new reality for me, it's just reality
16. Something I never thought I could do with my illness that I did was: have perfect attendance in high school AND college... BOO YA
17. The commercials about my illness: Commercials? 
18. Something I really miss doing since I was diagnosed is: Again, not applicable 
19. It was really hard to have to give up: It's hard to give up my mobility
20. A new hobby I have taken up since my diagnosis is: not running
21. If I could have one day of feeling normal again I would: Dance, do gymnastics, physical stuff
22. My illness has taught me: That you have to deal with the hand you're dealt
23. Want to know a secret? One thing people say that gets under my skin is: "I feel so sorry for you" I really don't need your pity
24. But I love it when people: Ask me how I'm doing or congratulate me on something I did
25. My favorite motto, scripture, quote that gets me through tough times is: Rise & Fly
26. When someone is diagnosed I’d like to tell them: That everything will be okay
27. Something that has surprised me about living with an illness is: It gives you a clearer perspective on life
28. The nicest thing someone did for me when I wasn’t feeling well was: Sent me a facebook message saying get well soon
29. I’m involved with Invisible Illness Week because: To show that just because someone looks normal, you can't always assume that they are
30. The fact that you read this list makes me feel: Peachy Keen

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