Showing posts with label special needs children. Show all posts
Showing posts with label special needs children. Show all posts

Saturday, November 10, 2012

NHBPM - Crippie (Finally) Gets Back To Business!

Salutations!

It's been a long almost two weeks, but things are finally getting back to normal. We didn't sustain any damage during that lovely snow storm, we got our power & internet back, and the gas lines are starting to subside. All the pets are alive and well. The generator, blankets, fleece, and general fatness kept the pigs warm and toasty. I'm gonna be monitoring them for a few days to make sure no one is hiding a respiratory infection. Helen stayed cozy by dressing in her warmest attire, and Angel really didn't notice that anything was out of the ordinary. As challenging as the past two weeks have been, it's good to see rising up and helping out those in need. I dunno if it's a NY/NJ thing... but when something tries to knock us down we get up, help one another, and we rebuild.

I'll rebuild New Jersey when I wake up, okay Mommy?



Moving on, now that I FINALLY have teh interwebz, I can finally participate in National Health Blog Post Month. I'm 10 days behind... but whatever. I'll use the other prompts when I can't think of anything to write about. Anwayyyyyyyy, today's prompt is...


Should people post about their (or loved ones) health on Facebook? Why/why not?

The answer: sometimes. My general rule of thumb is, if it's something that other people will actually care about... post away. I usually only post about my health while I'm recovering from surgery. That's a time when people are worried and it's a good way to update a bunch of people at once. 

As for posting about a loved one, I'm fine with it as long as it something people need to know. I know someone who's young child had cancer, and they frequently updated their facebook with how he was doing. That's perfectly fine in my book, his illness was very serious, and I got to watch him kick cancer's ass via facebook! Also, if the person you are writing about is able to give consent, do make sure you have it before posting anything. My relatives ask for my permission before posting anything about me because they know it's my story to tell. 

That being said, there are times when people cross lines. Do I need to know every time someone has a headache? Nope. Should you make entire facebook albums devoted to a relative's stay in the hospital? I dunno about you... but I find them reeeeeaaaallllyyyyy creepy. Then there are  people who clearly flaunt their children's illnesses on facebook for attention. I don't know if they want pity or something, but I find that behavior revolting. Stop exploiting your damn kids for likes and get off the damn computer. I know people like that and they are BEYOND creepy and annoying. These people sound like crazy attention whores, and I don't care for them in the slightest. 

So yup, there ya go :)


Crippie's Tippie - There are alternatives to posting on facebook, if you want to keep people updated you can make a blog. www.caringbridge.org is a great site to check out. My grandma used to it blog about my grandpa's battle with cancer, you can check it out. 


Wednesday, June 20, 2012

Growing Up Crippie

Ohai!

First off, "Crippie's Corner" has reached over 20,000 page views! HOLY FREAKIN' CRAP! Thank you guys so much. When Crippie started blogging I was shocked to see that I had 20 views. I cannot put it into words how much it means to me that you guys are interested in what I say (my piggies are in the background saying "um... mom... all those people just wanna see our faces"). Gotta give a special shout out to Mary, Mario, & Chris for their awesome comments :D

Since we are dealing with a special occasion here, Crippie figured she should answer a cripple question of awesome caliber... "how did having a disability effect you growing up?" Where to begin...

When Crippie was just a lil Crippie, let's say under 10, I knew I had "bumpy bones" and that they made me suck at gym, but that was about it. My disability had a relatively small impact on my life. I had some really good friends, went to birthday parties, did well in school, all that normal jazz. The only time being a cripple really had an impact was in gym. I was horrrrriiiiiibbbbbblllllleeeeeee at most gym activities and kids would pick on me for it. Again, relatively minor in the scheme of things.

Crippie had surgery when she was 10 make my leg straight, and I wound up with massive complications. This is when my disability had a profound effect on me. I was in constant pain, couldn't walk, and couldn't attend school. My "friends" along with damn near everyone I knew opted to no longer associate with me. Fun, right? So Crippie spent the next few years with minimal social contact. Being visibly crippled and being in Middle School do not mix... at all. I was never invited to "hang out" with people, never attended a birthday party, nothing. No one wanted to associate with me so I became very used to being alone. I focused on my studies, I figured winning tons of awards and whooping everyone's butts in class was a subtle "screw y'all".

In high school most people still wouldn't associate with Crippie, but I figured ways to better select friends. Crippie opted to hang with people who wouldn't shun me for being a cripple... these people were other cripples and members of a local religious commune. I had a handful of friends in high school and at age 17 I was finally invited to a birthday party! Still, I had very limited social interaction. My summers were consumed with surgeries, so I couldn't exactly go "hang out" with people. Crippie compensated for the general physical sickness and social inadequacies by being insanely smart. Crippie did insanely well on all of her exams, and graduated in the top percent of her class. I never missed a day of high school and won a bunch of scholarships and awards!

I guess it's safe to say that being a cripple had a massive effect on my life, especially my social life. This is why Crippie doesn't take a lot of her "autistic tendencies" terribly seriously... hard to tell if they're actually autistic tendencies or a result of being treated like crap by damn near everyone outside of my family. It was definitely challenging growing up with a disability. It was very painful, very frustrating, and very isolating. The more I think about it... the more I realize that my life really sucked from ages 10-18. Alas, no point in dwelling on that... now Crippie has to acknowledge the crap, learn from it, and move on.

Crippie's Tippie - If your friend is sick, having surgery, anything... don't act like they fell off the face of the Earth. Hang out with them, call, text, post a message on their facebook wall, ANYTHING to let them know that you do in fact care. 

P.S. Anyone interested in hearing about growing up with a disability from my mom's point of view? I know she certainly has some tippies for the normals

Sunday, May 13, 2012

Happy Mother's Day!

Greetings!

The Mama Pig update - Mama Pig celebrated with some dried bananas, one of her favorite treats! She continues to have problems pooping. Crippie probably needs to increase the amount of food Mama pig consumes in a day. *Gasp* I know, I'm a terribly mommy, giving my pigs two salads a day instead of one. However will they manage!

Moving on, HAPPY MOTHER'S DAY to all my readers who are moms! Crippie's hopes each and every last one of y'all had a fantastic mothers day! Crippie had a wonderful day celebrating with her Mom and Grandma. Crippie's Mom, Dad, Sister, Grandma and I went to a local diner for noms and we obtained KFC for dinner so no one would have to cook at all today!!! Yay us!

Since Mother's Day is all about showing your appreciation for your mom Crippie figured she'd give a shout out to her totally awesome Mom! Crippie's loves her mother very, very much. She's smart, funny, and all around awesome. She's always been supportive of my endeavors and she's always encouraged me to be the best I can be. Whenever Crippie was sick or recovering from a surgery my mom was always there taking care of me. I cannot even begin to imagine how hard that must have been for her to go through. Most parents can't stand the thought of their kid crying for an immunization... I can't imagine how much it must've hurt her to see me crying because I had massive nerve damage. Being a parent to a special needs child takes massive amounts of courage and strength in order to get from day to day, and my mom certainly displayed that. She fought the school system to get the accommodations I needed, she would speak to my classes to let people know what was wrong with me. Crippie's mom helps run a friggin support group for people with MHE... that's pretty much "Awesome Cripple Mom Level 9000". Not to mention that I'm not the only cripple in the family. My sister has some mental illnesses and my mom is constantly advocating for her needs. Seriously people, it's harder to advocate for mental illness than physical illnesses.... it takes soooooooooooooo much patience to deal with the bull crap. My mom deals with all this alllll while dealing with fibromyalgia.

In short, my mom has to deal with a lot of crap, but she handles herself with dignity and grace. Crippie definitely tries to model herself after her :D

Love you Mommie! HAPPY MOTHER'S DAY!!!! <3

Crippie's Tippie - Don't just appreciate your mother on mother's day... appreciate her on ALL THE DAYS!

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