Thursday, April 19, 2012

Damnit Fanny


Thanks for your support guys, the ninja vibes totally help!

Crippie had her pain management appointment today, and I honestly didn't know what my doctor would say or do. Crippie specifically told the doctor that my current course of treatment helps most of my pain except for my hip. I showed her my x-rays and she examined my hips, legs, and Fanny. The doctor's verdict iiiiiissssssssssssssssssss...
1) Fanny is pressing on my sciatic nerve.
2) Tumors in my hips are making the muscles in my legs contract, Crippie cannot straighten her leg
The Remedy - Neurontin for the nerve problems and stretches for the muscle problems

Crippie was totally not expecting those diagnoses, but they make a lot of sense. At first Crippie didn't believe the first diagnoses of sciatic nerve issues because my prior experience with nerve pain was a little different to say the least. I'm used to RSD to nerve pain... which is probably the worst pain I'll ever experience. The pain in my hips is more of a dull ache. It turns out the sciatic nerve pain can be a dull ache... who knew! Crippie was also very surprised about the whole muscle thing. I guess I never noticed that my leg doesn't straighten or that my muscles are tight. If anyone is wondering how I couldn't notice that... it's my normal. I'm used to it. I don't know what normal functioning legs feel like.

Crippie is so thankful that my doctor actually gives a crap about my quality of life. She is verrrrrryyyyy cautious about my meds because she knows I'm gonna be on them for the rest of my life. She cares about the quality of my future life, this muscle thing could turn into a huge problem in 10-20 years. Yet she realizes that I am in pain now and that I have to be treated now. It's unfortunate that I don't hear about doctors like her often.

BTW, if anyone was wondering how Crippie deals with news like this... Crippie is usually happy to get explanations and answers, even if it is potentially bad news. Today's appointment pretty much confirmed that my disease is progressing and that I am getting worse. I accepted the fact that my condition would progress long ago, so now I try to focus on what Crippie can do about it. Crippie is going to schedule an appointment with her orthopedist within the next few weeks and we'll take it from there.

Crippie's Tippie for Doctors - CARE ABOUT YOUR PATIENTS!!!


  1. Oh Crippie - my heart goes out to you. I just hate this for you. There are times I'd like to trade places with my daughter because it's so sad to see young people have to deal with all this serious medical stuff. You do have the most amazing attitude tho, and that will serve you well. I have problems similar to yours in the lower back - it's makes it tough to sit in one place for any amount of time. Maybe the next doctor can help you. Or maybe physical therapy would help too.

  2. Thanks Mary, your support and kind words mean so much to me <3


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